These are extremely specialist publications, so I’ve put them together in a single review. This isn’t something for the casual reader, but I would heartily recommend them for anyone who’s about to become or have a tubie in their life, as well as anyone in the medical profession who will come into contact with tubies.
Flap Copy: Complete Tubefeeding is the definitive guide for anyone living with or preparing to receive a feeding tube, and those who care for them. The author, happy owner of a feeding tube himself, combines the best and latest medical research with insights from his and others’ real-world tube feeding experiences. This helpful handbook provides comprehensive and compassionate coverage of all aspects of tube feeding and nutrition via tube, including:
- The different types of enteral feeding tubes, their placement, use and care, with loads of useful tips and tricks to make living with a feeding tube easy as can be.
- Tube nutrition, with sections on commercially available formulas as well as a detailed approach to a blended diet (sometimes known as a blenderized diet) — how to use real food for tube feeding while ensuring complete nutrition and stress-free management of blending.
- Commonly faced problems with tubefeeding, discussed at length and with solutions presented, ranging from possible medical complications to psychological and emotional issues and the impact on family life.
The introduction of a feeding tube within the family can be a time of fear and isolation, and even for many a sense of helplessness. Complete Tubefeeding empowers readers with a treasure trove of targeted, practical information, presented in down-to-earth language for the tubie, parent, carer and professional alike. Those just starting out on the tube feeding journey will reap the collected wisdom of hundreds who live and thrive with feeding tubes in addition to best practices gleaned from medical science. Those seeking nutrition information and considering a switch to a blended diet will find simple but thorough explanations and handy instructions for homemade blends. Health professionals will benefit from in-depth analysis, particularly on increasingly popular blended diets. Also included are over 35 sample blend recipes (with nutritional information provided) to adapt and quickly put to use, all created with good health, ease, and enjoyment in mind.
Alongside the invaluable knowledge of hundreds of tubie parents, carers, and tubies themselves, the author presents his own personal experiences and hands-on research. Eric Aadhaar O’Gorman brings his unique and readable style, the voice of a friendly, no-nonsense expert, to an all-encompassing work on this woefully under-resourced topic. Complete Tubefeeding sheds light, inspires confidence, and proves that for tube-fed people of all ages, a healthful, easy, and indeed normal life is entirely within reach.
The Homemade Blended Formula Handbook
Flap Copy: The Homemade Blended Formula Handbook offers the reader an integral way of thinking about providing meals for children–meals that are nourishing physically, mentally, emotionally and spiritually.
Its primary focus is to offer a deep understanding of how to create tube feeding meals that are compiled from foods that are available to all children and families. It provides a guide to the process from the initial concept to the development of formulas that offer dietary diversity and high-level nutrition. It focuses on the continuum that identifies the best fit for each child and each family.
At its deepest level this is a book about children and their families. It is a book about mealtimes as a focal point in the life of the child, family and community.
It offers practical ways of including children who receive their nutrition by feeding tube into the life of the mealtime community. It celebrates their unique contributions, in partnership with the person who feeds them.
The book is designed as a reference and “how to” for parents and professionals who together are making the choice to try a homemade blended diet for tube feeding. 35 reproducible chapters and 16 food references charts have been written by feeding therapists, dietitians, physicians and parents.
Review: Both of these books together provide a wealth of information about the tube-feeding lifestyle. Complete Tubefeeding offers a first-person account of an adult living with a feeding tube. Providing history, context, and just enough medical information to make it complete, Complete Tubefeeding is a perfect primer. In addition, it contains a wealth of recipes and ideas for creating recipes.
In this way it is a perfect complement to Homemade Blended Formula, which focuses on children with feeding tubes and provides parents with enough information to make decisions for little ones who cannot speak for themselves. HBF includes worksheets and “spine” recipes that provide an easy way for parents to develop their own routine.
Both books recommend a blended diet in favor of formula when medical conditions allow. Both are clear that there is no one right way to do things, and both provide much-needed support and even humor to a situation that is often fraught. While each book stands on its own, they are so complementary to one another that I have to recommend them both to complete a tube-feeding library. And as I said above, I feel strongly that not just tubies or caregivers should read them, but anyone who may work closely with a tubie. Our experience with medical professionals, even those specifically related to our tube feeding journey, is that they are pretty ignorant of what it’s actually like to live with a feeding tube and these books could clear up a lot of misunderstandings.
Source: Personal library